*Personalised Care
**How has this model been developed nationally and why are there local variations?
**What is shared decision making?
‘Shared decision making is when health professionals and patients work together. This puts people at the centre of decisions about their treatment and care.’
During shared decision making, it’s important that:
Care and treatment options are fully explored, along with their risks and benefits.
Different choices available to the patient are discussed.
A decision is reached together with a health or social care professional.
Shared decision making is relevant in any non-life-threatening situation where you need to make a decision about your health.
Can you think of a time when you’ve had a good shared decision-making conversation. What made it different?
It helps me to have a better idea of what rights I have as a patient and how I have an equal right to quality care just like everyone else even though I am a neurodivergent individual.
Video: Shared decision making in practice.
Article: Social perscribing
This is what the appointments in December are all about...that's what will open up for me.
A social prescribing link worker will work with you to consider your wider wellbeing needs. They will give you time to focus on ‘what matters to you’ and take a whole person approach to your health and wellbeing. This can include shared decision making and/or personalised care and support planning (find out more about this in week 4). The link worker then links you into community groups and other services for any practical and emotional support, where it exists in your local area.
Video: What is Social Perscribing?
Example: I am going to be visiting a treatment/diagnostic center next month for my condition and from there, I will be set up with different resources to help me manage my illness better.
Video: Your Legal Right To Choose.
There are six areas where you have a legal right to choose:
Which GP and GP Practice you register with for your care
Where to go for your first outpatient appointment, for both physical and mental health
The right to ask to change your provider (usually a hospital) if you have to wait longer than the national waiting time standards (18 weeks, or 2 weeks to see a Specialist for cancer)
Who carries out your specialist tests when you are referred by your GP
To have a personal health budget if you are eligible
Choice to access treatment in another country.
Thoughts about my rights as a patient: I was surprised to learn that I had so many rights as a patient. I simply thought I had to accept what was and that I didn't have the right to express preferences about who I was treated by or how I was treated. It was not until I got diagnosed with a chronic illness that I came to learn the importance of speaking up for myself and being my own advocate so that I could learn what would work best for me in terms of doctors and treatment. Once I was aware of my rights as a patient, I was able to find my voice and use it to become more aware of my illness, ask the right questions, and have a hand in determining what type of care would be the best for me.
Have you been given a choice?
Here are some useful questions you can use to check that you have been given a choice. It’s worth bearing in mind that not every choice would be appropriate so a bit of common-sense is needed!
Have I discussed the ‘pros’ and ‘con’s’ of different treatment options with my GP/health care professional including whether to have the treatment or not?
Was I offered a choice of where to go for my care or tests?
Did I have the opportunity to choose a suitable alternative hospital? This question applies if the time you would need to wait exceeds your ‘legal right’ to an appointment.
Was information made available to help me make my decisions? If I was given information, was it accessible to me? For example, did it use words I could easily understand?
Was I given sufficient time to consider what was right for me?
Quiz
What experience have you had (if any) of social prescribing, shared decision making or your ‘legal rights to choose’?
I'm actually going through the whole process of shared decision making right now in that I will be going to a diagnostic and treatment centre in a couple of weeks for further examination after being referred there by a specialist.
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